Congestive heart failure
The symptoms of heart failure can vary from one person to the next. The main symptoms are breathlessness, extreme tiredness and ankle swelling, which may extend up the legs.
The symptoms of heart failure can vary from person to person. The main symptoms are breathlessness, extreme tiredness and ankle swelling, which may extend up the legs.
These symptoms may be caused by conditions other than heart failure, and sometimes there may be more than one cause for them.
For example, it is possible for someone to have both emphysema and heart failure, and for both to cause breathlessness. Tiredness and ankle swelling are not usually caused by serious problems.
If you have symptoms such as tiredness and breathlessness, your GP may suggest that you have some tests to see whether you have heart failure, or to rule it out as a cause of your symptoms.
If you have heart failure, you may also get breathless if you lie flat, or you may wake up in the middle of the night with such severe breathlessness that you have to sit or stand up to catch your breath. If you have severe heart failure, you may need to sleep propped up by several pillows.
Ankle swelling related to heart failure is usually better in the morning and gets worse later in the day, although this is the case for most causes of ankle swelling.
If you have ankle swelling in the morning, it may be useful to raise the foot end of your mattress by 15 to 30cm (about 6 to 12 inches) because this will help gravity drain the fluid back into your body.
Other symptoms sometimes associated with heart failure include:
- a persistent cough
- lack of appetite
- weight loss
- tachycardia (rapid heart rate)
Monitoring your health
If you have been diagnosed with heart failure, you should monitor your symptoms closely. Weigh yourself daily (after getting up in the morning, before getting dressed) using a reliable set of scales.
If your weight increases by more than 2kg (4 to 5lb) over a few days, it may be a sign of fluid retention. This could be an indication that you need to watch the amount of salt in your diet, or check with your care team about whether you need to take some more diuretics (water pills).
You should also inform your GP or care team if you develop any new symptoms, or if an existing symptom suddenly gets worse.
Congestive heart failure
In most cases, heart failure does not have a single cause. There are a number of other conditions that increase your chances of developing heart failure.
In most cases, heart failure does not have a single cause.
There are a number of other conditions that increase your chances of developing heart failure. These include:
- high blood pressure (hypertension) – this can put extra strain on your heart, which can lead to heart failure
- coronary heart disease (CHD) – where the arteries that supply blood to your heart become clogged up by fatty substances (atherosclerosis); this may cause angina or a heart attack
- heart muscle weakness (cardiomyopathy) – this can cause heart failure; the reasons are often unclear, but it may be genetic in origin, or caused by infections (usually viral), alcohol misuse, or medication used to treat cancer
- heart rhythm disturbance (atrial fibrillation)
- anaemia – a lack of red blood cells
- an overactive thyroid gland
There are also a number of other conditions that can increase your risk of developing heart failure. Some of these are discussed below.
Heart rhythm abnormalities (arrhythmias)
If your heart beats too fast, it may not have enough time to fill and empty properly. This will cause the heart muscle to weaken.
A very slow heartbeat (less than 40 beats per minute) may reduce the output of your heart, leading to the symptoms of heart failure. However, some people who are very fit can have a pulse of less than 40 beats per minute.
An irregular heart rhythm (atrial fibrillation is the most common irregularity) increases your risk of developing a blood clot (thrombosis), which may cause a stroke. In some people, it may also cause heart failure, particularly if the heart rate is too fast.
Damaged heart valves
The heart contains four one-way valves that ensure the blood flows in the right direction. A leaking valve means your heart has to work harder and will stretch to deal with the extra volume of blood.
A narrowed valve can obstruct blood flow and reduce the amount of blood that your heart can pump, as well as increase the stress on the heart muscle.
Some children are born with faulty valves (congenital heart disease). Heart valves can also be damaged during a heart attack, or sometimes they can just wear out. The average heart beats about 75 times per minute, which is 4,500 beats an hour or more than 100,000 heart beats a day.
Some damaged heart valves can be repaired, but others have to be replaced. This usually requires an open heart operation, although less invasive alternatives are now becoming available and can be used in certain situations.
Myocarditis is inflammation of the heart muscle. It is usually caused by a viral infection and can sometimes lead to heart failure. However, myocarditis is rarely recognised as a cause of heart failure in the UK.
Other congenital heart conditions
Some babies are born with a "hole in the heart", which is an abnormal connection between the left and right sides of the heart.
This allows blood to flow from one side of the heart to the other (usually left to right), putting a strain on the right side and sometimes causing heart failure.
In some cases, a hole in the heart may not be detected until adult life. Holes can often be plugged using keyhole surgery techniques, though sometimes an operation is required.
Congestive heart failure
If you have symptoms of heart failure, your GP will ask you to describe them in detail. You will also have a physical examination.
If you have symptoms of heart failure, your GP will ask you to describe them in detail. You will also have a physical examination.
If heart failure is suspected, a number of tests may be recommended to find out more. Some of the tests that you may have include:
- blood tests – to check whether there is anything in your blood that might indicate heart failure or some other illness
- breathing test – you may be asked to blow into a tube to check whether a lung problem is contributing to breathlessness
- an electrocardiogram – this records the electrical activity of your heart
- an echocardiogram – where ultrasound waves are used to examine your heart and check how well it is pumping, and whether there are valve problems (the procedure is similar to the one used to look inside the womb during pregnancy)
You should ask your doctor whether you should have these tests if you are not offered them but you are receiving treatment for heart failure.
Blood tests can help identify whether another condition is causing your symptoms, such as anaemia, diabetes, thyroid problems, kidney disease, or liver disease. A high blood cholesterol level is often associated with coronary heart disease, which may lead to heart failure.
Natriuretic peptide test
Your blood will be tested for a substance called natriuretic peptide (also called BNP or NTproBNP). If your heart is under high levels of stress, it will secrete BNP into your blood. The test is able to detect these increased levels.
A natriuretic peptide test can also indicate the severity of your heart failure. Higher levels of BNP/NTproBNP in your blood may indicate that you have more severe heart disease, while lower levels may indicate a milder form.
You can read more about the BNP test on the Lab Tests Online UK website.
An echocardiogram, or echo, is a procedure that can be used to look at the structure of your heart in detail.
A pulse of harmless high-frequency sound waves is passed through the chest wall and produces a picture by "bouncing back" from the heart's structures (similar to an ultrasound scan used during pregnancy).
During the test, you will be asked to lie on your left side with your left arm behind your head. A gel will be put on your chest and an ultrasound probe (recorder) will be placed at various points on your chest between your ribs.
The probe will pick up echoes from your heart and show them on a screen as a detailed image of the structures of your heart. The image is known as an echocardiogram.
An echocardiogram provides a lot of useful information about the heart, including:
- how well your heart valves are working and whether any are damaged
- how well your heart is working as a pump (when your heart contracts, it forces blood to circulate around your body – this is known as the systolic function)
- how well your heart relaxes after pumping (the heart fills with blood when it relaxes after each contraction – this is known as the diastolic function)
- whether there are holes in the walls between the chambers of your heart that allow blood to flow from one side to the other (intracardiac shunts)
The most important finding from an echocardiogram is usually a measurement of how well one of the heart's chambers – the left ventricle – is pumping. The left ventricle pumps the blood around the body.
A measurement called the left ventricular ejection fraction (LVEF) is an estimate of how much of the blood that enters the left ventricle is pumped out when the heart muscle contracts.
In a healthy heart, about 60% of the blood entering the left ventricle is pumped out when the heart muscle contracts. A value of less than 40% indicates that your heart is definitely not pumping normally.
Sometimes different types of echocardiogram are carried out. These are outlined below.
A stress echocardiogram is carried out to see how well your heart functions when it has to work hard. During the test, your heart rate will be increased, either by exercising on a treadmill or exercise bike, or by using injected medication.
Ultrasound does not travel well through lungs, which can make imaging the heart through the chest wall difficult.
However, the heart lies right in front of the oesophagus (the tube connecting your mouth to your stomach).
This makes it possible for a thin, flexible tube with a small ultrasound probe at the end to be inserted into your oesophagus to examine the structures of your heart in much greater detail.
Before the procedure, you may be given a mild sedative to help you relax, and an anaesthetic will be sprayed on to the back of your throat.
You can read more about echocardiograms on the British Heart Foundation website.
A chest X-ray may sometimes be used to check whether your heart is bigger than it should be and whether there is fluid in your lungs, which might indicate heart failure. It can also pick up lung conditions that may be causing breathlessness.
Read more about tests for heart conditions on the British Heart Foundation website.
Congestive heart failure
Medicines are the main treatment for heart failure. A number of surgical options are available. Lifestyle factors such as a healthy diet and exercise are also important.
If you have been diagnosed with heart failure, you can reduce your risk of further episodes by making simple lifestyle changes.
Stopping smoking (if you smoke) will quickly reduce your risk of having a heart attack to near that of a non-smoker.
Read more about lifestyle changes and preventing heart failure.
You may be given an opportunity to attend a heart failure rehabilitation programme. These programmes vary widely throughout the country, but most will cover basic areas, including:
- relaxation and emotional support
After completing your rehabilitation programme, it is important that you continue to take regular exercise and lead a healthy lifestyle to protect your heart and reduce the risk of further heart-related problems.
You can read more about cardiac rehabilitation on the British Heart Foundation website.
Medicines for heart failure
Most people with heart failure are treated with medicines. Depending on your symptoms, you may need to take several medicines. For people with heart failure and heart failure caused by left ventricular systolic dysfunction, these include:
- angiotensin receptor blockers (ARBs)
- aldosterone blockers (spironolactone or eplerenone)
- digoxin (occasionally)
Many patients with heart failure with preserved ejection fraction will require similar treatment.
The doses of these medications will be adjusted by your doctor. You may occasionally need to have blood tests to monitor your kidney function, especially when doses are altered.
Ask your doctor if you are not sure whether you are on the best dose for you. The first medicine you try may not work properly or suit you, so changes may be needed until you and your GP find a combination that works for you.
You may also be offered other medicines if you have another condition or other symptoms that also need treatment.
Diuretics (water pills) make you pass more urine and help relieve ankle swelling and breathlessness caused by heart failure.
There are many different types of diuretic, but some of the most widely used for heart failure are bumetanide and furosemide (also called frusemide). In some mild cases, a diuretic called bendroflumethiazide may be used.
A diuretic called metolazone may be used together with bumetanide or furosemide in people with severe fluid retention.
Angiotensin-converting enzyme (ACE) inhibitors work by dilating your blood vessels (opening them up), which makes the blood flow more easily and reduces blood pressure. This makes it easier for your heart to pump blood around the body.
ACE inhibitors often have a positive impact on the heart's performance and may improve your quality of life. They reduce the risk of hospitalisation and prolong life.
The most common side effect is a dry, irritating cough. If you have a troublesome cough, an ACE inhibitor may be switched to an ARB.
ACE inhibitors can also cause your blood pressure to fall too low, and they may upset kidney function. Your GP will monitor this.
Beta-blockers are usually used to treat people with heart failure caused by systolic dysfunction (where the left ventricle that pumps blood around the body doesn't work properly).
These drugs reduce the risk of hospitalisation and prolong life in patients with a low left ventricular ejection fraction (the amount of blood pumped out by the left side of your heart).
Beta-blockers work by slowing your heart down and protecting your heart from the effects of chemicals produced by the body called adrenaline and noradrenaline.
Your doctor may start you on a low dose and increase it over a few weeks or months. There are several different beta-blockers, but the ones used to treat heart failure in the UK are bisoprolol, carvedilol and nebivolol.
As long as the heart is in a normal rhythm (sinus), ivabradine will slow the heart rate. It can be a useful alternative for some people when beta-blockers cannot be used or are not tolerated.
If beta-blockers do not slow the heart enough, the addition of ivabradine can provide added protection, leading to improved heart function and symptoms.
It can also reduce the risk of hospitalisation and prolong life in people with a low left ventricular ejection fraction.
Aldosterone antagonists are suitable for some people with heart failure. They work in a similar way to diuretics, but they can stop the diuretics from washing out potassium and may also help reduce scarring of the heart muscle.
They improve symptoms, reduce the risk of hospitalisation, and prolong life in people with a low ventricular ejection fraction.
The most widely used aldosterone antagonists are spironolactone and eplerenone. Spironolactone may cause swelling and pain around the nipples in men and testicular atrophy (shrinking of the testicles). Eplerenone rarely causes such effects.
The most serious side effect of these medicines is that they can cause the level of potassium in your blood to go too high, which can cause problems. Your doctor will carry out regular blood tests to monitor your potassium level.
Angiotensin receptor blockers (ARBs)
Angiotensin receptor blockers (ARBs) work in a similar way to ACE inhibitors by widening blood vessels and reducing blood pressure. They tend to be used as an alternative because they do not usually cause a cough.
Examples of ARBs include candesartan, losartan, telmisartan and valsartan. Side effects include low blood pressure (hypotension) and high levels of potassium in your blood. Your doctor will carry out regular blood tests to monitor your potassium level.
Although ARBs do not cause coughs, they may not be quite as effective as ACE inhibitors.
Hydralazine with nitrate
When hydralazine is combined with nitrate, the blood vessels dilate (open up). These medicines are sometimes prescribed by heart specialists for people who are unable to take an ACE inhibitor or ARB.
Digoxin, derived from the foxglove plant, can increase the strength of your heart muscle contractions and slow down your heart rate. It can improve symptoms and reduce hospitalisation, but it does not appear to prolong life.
It is recommended for people who have symptoms despite treatment with ACE inhibitors, ARBs, beta-blockers and diuretics. It is used earlier in people who have both heart failure and a condition called atrial fibrillation (where the heart beats irregularly).
Warfarin is the most commonly used anticoagulant, and requires careful monitoring by your GP or doctor to make sure you get the right amount.
Aspirin is not usually taken with warfarin. Speak with your GP if you are concerned.
Devices for heart failure
You may need to have a pacemaker fitted if your heart beats too slowly, even if this only occurs occasionally.
A pacemaker monitors your heart rate continuously. If your heart rate drops too low, it sends a signal down a wire to your heart muscle to stimulate it.
There are several different types of pacemaker. The best one for you will depend on the type of heart rhythm or beat problem you have.
The pacemaker is implanted under the skin by a cardiologist (heart specialist), usually under local anaesthetic. You will usually need to stay in hospital overnight to check it is working properly. Serious complications from pacemakers are unusual.
Pacemakers need to be checked regularly by specialist technicians at a pacemaker clinic. You will also need to be careful about things that can affect how your pacemaker works, such as hospital equipment and security systems in shops or at airports.
Cardiac resynchronisation therapy
In some people with heart failure, the walls of the left ventricle (the main pumping chamber) do not work together and contract out of phase with each other.
Cardiac resynchronisation therapy (CRT) is a special type of pacemaker that can correct the problem, making the walls of the left ventricle all contract at the same time. This makes the heart more efficient.
Most pacemakers only have one or two wires to the heart, but CRT requires an extra wire that is a bit harder to get into place than the other wires.
CRT is considered for people who:
- have moderate to severe heart failure symptoms despite medication
- have a left ventricular ejection fraction (the amount of blood pumped out of the left ventricle) of less than 35%
- have evidence from an electrocardiogram (ECG) that there is a problem with the electrical activation of the left ventricle (a measurement called QRS width) – if it is longer than 150 milliseconds (ms), there is strong evidence of benefit; if it is 120 to 150ms, the evidence is less strong (a normal QRS is less than 100ms)
Implantable cardioverter defibrillators (ICDs)
People who have (or are at high risk of having) an abnormal heart rhythm, called ventricular tachycardia (VT) or ventricular fibrillation (VF), may need to have a device known as an implantable cardioverter defibrillator (ICD) fitted.
With VT, the heart beats too fast and there is not enough time for the heart to fill with blood between beats. This can lead to a blackout and may cause VF.
In VF, the heart rhythm is so abnormal that the heart no longer contracts, but "quivers" instead. This results in death unless an electrical shock is given to the heart to restart it.
An ICD works by constantly monitoring the heart rhythm. If VT is detected, the ICD will try to correct it. If this does not work, the ICD will try to bring the heart back to normal by giving it a small, controlled electrical shock.
If this fails, the ICD will deliver a larger shock. The electrical shocks are known as defibrillation. If the ICD detects VF, it will defibrillate the heart immediately.
As with pacemakers, ICDs are implanted in hospital, usually under local anaesthetic. Like pacemakers, you will need to avoid things that can interfere with the way the ICD works, such as airport security systems.
Read more about ICDs on the British Heart Foundation website.
Devices that combine cardiac resynchronisation and the ICD function are implanted into patients who need both. Two separate devices are not necessary. These combination devices are usually called CRT-Ds.
Medicines are the main treatment for heart failure, but for some people an operation may help.
Heart valve surgery
If the valves of your heart are damaged or diseased, your doctor may suggest valve surgery. There are two types of valve surgery – valve replacement and valve repair.
The type of surgery you have will depend on what is wrong with the valve and how serious the problem is. Your doctor will discuss it with you.
Angioplasty or bypass (revascularisation)
This will help get the blood flowing to your heart muscle and can improve angina, reduce the risk of a heart attack in some cases, and sometimes improve heart muscle function.
Left ventricular assist devices
A great deal of research has been carried out to try to make a mechanical heart that can replace heart function completely. So far attempts have met with limited success.
However, mechanical pumps have been developed to boost, rather than replace, the failing left ventricle. These are quite successful for people with severe heart failure that is difficult to control with medicines.
These pumps are complex and expensive, and are not suitable for everyone. They are usually only implanted into a patient surgically at a heart transplant centre.
Mechanical booster pumps require an external battery, so a wire has to be tunnelled underneath the skin. The wire can cause an infection, which is a major drawback of this type of technology.
In the UK, several hundred people are living at home with fairly active lives after having one of these pumps fitted.
In recent years, the survival rates and quality of life among people with severe heart failure has improved substantially.
However, some people have such severe heart failure that treatment with medicines or surgery does not help, and they may need to have their diseased heart replaced with a healthy one from a donor.
Having a heart transplant is a major decision. It is a complex surgical operation with risks. There is also a shortage of hearts for transplantation, and some people have to wait years for a suitable heart closely matching their own.
Congestive heart failure
There are many ways of reducing your chances of developing heart failure, including maintaining a healthy weight, eating healthily and exercising regularly.
Many of the factors that increase your risk of developing heart failure can be managed either by making lifestyle changes or by taking medicines.
In particular, high blood pressure (hypertension) and smoking are risks for heart health, and tackling them could help reduce symptoms and improve quality of life.
Giving up smoking (if you smoke) is likely to be the single biggest way to cut your risk of developing coronary heart disease and heart failure. Tobacco smoke can damage your heart in a number of ways, forcing it to work harder.
Smoking also tends to make the blood thicker and slows down blood flow, increasing the risk of blood clots (thrombosis). It damages the linings of the arteries, causing them to fur up. This furring up of the arteries (atherosclerosis) is a main cause of coronary heart disease, stroke and some forms of dementia.
Research has shown you are up to four times more likely to give up smoking successfully if you use NHS support, together with stop-smoking medicines. Ask your GP about this or visit the NHS Smokefree website for more information.
Reduce your blood pressure
If your blood pressure is too high, your heart has to work harder to pump blood around your body. To cope with the extra effort, the heart muscle thickens over time and will eventually become too stiff or weak to work properly.
Keeping your blood pressure at a healthy level can stop or delay this happening, so it may be useful to have your blood pressure checked regularly.
It may be necessary to take blood pressure medicines (usually more than one) to get your blood pressure down to a healthy level. It is important you and your doctor choose the medicine or combination of medicines that will suit you.
Reduce your cholesterol level
The risk of coronary heart disease – and therefore heart failure – increases as the level of cholesterol in your blood increases. If you have other risk factors, such as high blood pressure or you smoke, the risk is even higher.
If, after a few months, your cholesterol level has not decreased, you will usually need to take cholesterol-lowering medicines called statins.
If you are overweight, added pressure will be placed on your heart, increasing your risk of coronary heart disease and heart attack. Both of these make heart failure more likely.
Following the advice below will help you lose weight, as well as lowering your risk of developing heart failure.
Eat a healthy diet
A healthy diet can help reduce your risk of developing coronary heart disease and therefore heart failure.
Regular physical activity can keep your heart healthy and help you maintain a healthy weight.
You do not need to join a gym or start running marathons, but including exercise in your daily routine will help.
If you do not have a good level of mobility, you may be able to do arm or wheelchair-based exercises.
Drink within safe limits
Drinking more than the recommended amount of alcohol can increase your blood pressure, which can lead to heart failure.
Heavy drinking over a number of years can damage your heart muscle and lead directly to heart failure, as well as having many other harmful effects on your health.
Men who regularly drink more than three to four units of alcohol a day, and women who regularly drink more than two to three units a day, are likely to be damaging their health.
Read more about cutting down your alcohol consumption.
Cut your salt intake
Too much salt can raise your blood pressure, so reducing the amount you eat will help keep your blood pressure down and reduce your risk of developing heart failure.
People of African Caribbean descent appear to be more at risk of the harmful effects of salt compared with people from other ethnic groups.
However, it is rarely helpful or necessary to have a diet that is very low in salt. Avoiding adding salt to food at the table or during cooking and not eating too many obvious salty foods, such as curry, salted snacks and pizza, is a good start.
Congestive heart failure
For heart failure, self care is an integral part of daily life. It means taking responsibility for your health and wellbeing with the support of those involved in your care.
Taking regular exercise will improve the overall health of your heart. However, an exercise programme led by a health professional can help people with heart failure breathe more easily and improve their quality of life.
If these programmes are available in your area, they are likely to be part of a service called cardiac rehabilitation. Most people on cardiac rehabilitation programmes will either have had heart surgery or a heart attack, but the programmes are also useful for people with heart failure.
They are usually run in hospitals by cardiac rehabilitation teams, which include various healthcare professionals, such as nurses, physiotherapists, occupational therapists and exercise specialists.
The exercise programmes vary widely across the country, but most cover one or more of the following:
- relaxation and emotional support
Before you start, you will have an assessment to find out how much exercise you can safely do. The programme leader will tailor a programme of exercises specifically for you. You will be encouraged to start slowly and gently, and to gradually increase the amount of exercise you do over the week. You should work within your limits and follow the advice you are given.
The sessions will begin with warm-up exercises. The main part of the session will be aerobic exercises that help your heart and circulation. Some programmes use special equipment, such as exercise bikes, and others will include exercises you can do in a chair.
You may be asked to monitor your heart rate while you exercise by using a small machine called a heart rate monitor, which you can hold or strap to your wrist. This is to ensure your heart does not work too hard.
At the end of each session, there will be a cool-down phase that will involve stretching your muscles to help stop them aching the next day.
The education part of the programme will give you information on healthy eating, recognising and avoiding stress, and practical ways to reduce the risk of further damage to your heart. Many programmes also focus on different ways to relax and finding a technique that suits you.
The British Heart Foundation website has a postcode search facility you can use to find a cardiac rehabilitation programme in your area. You can also read more about recovering from a heart condition.
Feelings and relationships
Being diagnosed with heart failure can be a shock. Some people feel scared, anxious, depressed or angry. They may feel unable to enjoy the things they used to, or to cope with everyday life. It is estimated that around one in five people with heart failure have depression.
You should seek help if you think you are depressed. Not only does depression reduce your ability to enjoy life, but it can make your heart failure symptoms worse.
Understandably, heart failure can make you worry about your health and how it affects your family. Many people also find that their physical relationship with their partner changes after they have been diagnosed because of worries about having a heart attack, or because they lose interest in sex or are unable to get an erection, which can sometimes be caused by your medication.
It is important that you discuss any worries or problems you have with your doctor or nurse if you feel unable to talk to your family. Many people do not want to burden those closest to them with their worries.
Your doctor or nurse will be able to advise you and arrange support. You may also find it helpful to join a heart support group, where you can talk to other people with heart conditions whose circumstances are similar to yours.
You can call the British Heart Foundation's heart helpline on 0300 330 3311 to find out about support groups in your area.
Being diagnosed with heart failure should not prevent you from travelling or going on holiday, as long as you feel well enough and your condition is well controlled. If you have heart failure, check with your doctor before you travel.
If you are flying, ensure you inform the airline of your condition. They may provide a wheelchair or electric car so you can avoid having to walk long distances at the airport.
Anyone travelling and sitting still for a long time, either in a car, coach or on a plane, should do simple exercises to reduce the risk of deep vein thrombosis (DVT). When flying, you should wear flight socks or compression stockings to keep blood flowing through your legs and reduce the risk of developing DVT.
You should also be aware that your legs and ankles may swell when flying, and breathing may become more difficult if you have severe heart failure.
It may be a good idea to take two sets of medication with you when you travel. Carry them in different places in case you lose one, and make a list of the medication you take and what it is for.
Having heart failure should not stop you getting travel insurance, but you may have to find a specialist company that will insure you.
You can read more about holidays and travel on the British Heart Foundation's website.
Work and financial help
Can I continue working?
If you are well enough, it is important to keep working for as long as you feel able. With the right support, staying in work can make you feel better and give you financial security.
Talk to your employer as soon as you feel that your heart failure is affecting your ability to do your job so you can find a solution that suits both of you. For example, it may be possible for you to work part-time.
The Disability Discrimination Act (DDA) requires employers to make reasonable adjustments to working practices or premises to help a person with a disability. This might, where possible, include changing or modifying tasks, altering work patterns, installing special equipment, allowing time off to attend appointments, or helping with travel to work.
What happens if I can no longer work?
If you cannot continue working as a result of heart failure, you may be able to claim disability and incapacity benefits.
People over the age of 65 who are severely disabled may qualify for a type of disability benefit called Attendance Allowance.
Find out more about money issues on the British Heart Foundation's website.
Help for carers
Carers may also be entitled to some benefits, depending on their involvement with the person with heart failure. You should find out whether you are getting all the benefits you are entitled to.
Caring for someone with heart failure
Looking after someone with heart failure can mean anything from helping with hospital or GP visits to collecting prescriptions, or full-time caring for someone with more severe heart failure.
There are many ways you can support someone with heart failure. Heart failure can be disabling and distressing, and many people with the condition find it a huge relief to share their concerns and fears with someone who cares.
As a carer, if you can attend GP and hospital appointments with the person with heart failure, you can encourage them to ask the right questions while you note down the answers. You could also provide the doctor with additional information or insights into the person's condition, which can be helpful for planning the right treatment.
Another way you can help is by watching for warning signs that the person's heart failure is getting worse, or if they are not responding to treatment. Contact the person's doctor if you notice a new symptom or if their current symptoms are getting worse.
Signs to look out for include:
- shortness of breath that is not related to usual exercise or activity
- increased swelling of the legs or ankles
- weight gain of more than 1.8 to 2.3kg (4 to 5lb) over a few days
- swelling or pain in the abdomen (tummy)
- trouble sleeping or waking up short of breath
- a dry, hacking cough
- increasing tiredness or feeling tired all the time
Read more about all aspects of caring for someone with a long-term health problem.
What will happen towards the end?
When heart failure gets more severe, a person may become more and more immobile.
Breathlessness can get worse and can become distressing. Increased intensity of treatment, sometimes including morphine (opioids), may be required to control breathlessness.
Some people also find that grumbling, low-level aches and pains become more of a problem as their heart failure gets worse. Opioids can also help relieve pain.
What is palliative care?
Palliative care is the support and care of a person's symptoms when there is no cure for their condition. Your doctor or nurse may suggest that you see a specialist or nurse in palliative care, or a counsellor.
A palliative care team will focus on controlling your symptoms, keeping you as comfortable and pain free as possible, as well as offering physical, psychological, spiritual and social support for both you and your family.
What decisions do I need to make?
The things you will need to consider are listed below.
- Making a will (if you have not made one already).
- Writing an advance statement. This lets those close to you know about the type of care you would like and where you want it – for example, at home, at hospital, or in a hospice – if you are not able to decide for yourself. While you can write down your wishes about what sort of future treatment you do and do not want, doctors can override your decision if they think it is in your best interests.
- Whether you want to make a living will (an advance decision). This allows mentally competent people to refuse some or all forms of medical care in the future when they are unable to make their own decisions or tell doctors what they want (for example, if they are in a coma). This is legally binding, so doctors must comply with your wishes.
- Whether you want to be resuscitated if your heart stops.
- Whether you would want your defibrillator turned off (if you have one).